This means I cannot crawl, kneel, get from a lying position to sitting or walk. I will never be able to do any of these things unless a cure is found. The one thing that would make my life better and enable me to do all the things a two and a half year old should be doing is a powered wheelchair. I already use a manual wheelchair indoors but it isn’t for use outside and I’m not strong enough to propel myself outside anyway. In a powered wheelchair I’ll be able to run along side my brother, hold my mummy’s hand whilst we walk to the park, reach up to the letter box and post a letter, pick a toy up from the floor.